Hepatocellular carcinoma (HCC) is largely regarded as an incurable disease; therefore, it is treated as a chronic ongoing condition. As oncology nurse navigators for patients with HCC, our role is to be a patient advocate and educate individuals on recommended treatments, as well as ensure that they have the necessary resources to continue with treatments and understand their choices. We have opportunities to bring the multidisciplinary team together to help patients throughout the continuum of care.
During initial diagnosis, patients are confused and unsure of which way to turn. Navigators are at the forefront of patient care and are the extra set of ears for patients’ questions, concerns, and needs. As we help them complete distress screenings, we get a clearer picture of anticipated needs and start the preparations necessary for patients to begin the treatment process.
In many instances, patients diagnosed with HCC have challenging backgrounds and lack support from family and friends, which makes compliance with treatment more difficult. It is important to establish a rapport with patients since this helps build trust and allows them the opportunity to reveal important aspects of their lives that might affect treatment success. For example, if patients are active alcoholics or intravenous drug users, these barriers must be addressed.
A team approach to patient care is extremely important. It is critical that patients are educated on the importance of being compliant with therapy and that they understand why they cannot miss treatments. Patients with financial issues may be unable to pay for transportation or medications, and should be educated on when to notify the navigator or healthcare team for assistance. Nurse navigators play a vital role in navigating these individuals through the continuum of care.
