CLL’s unique properties may lead to providers and patients conceptualizing the prognosis differently. These findings present new information about the needs of people with CLL, with potentially transferable implications for people with other chronic illnesses. Information should be shared with providers about how to discuss a CLL prognosis sensitively.
Demographics of Individuals Refusing Cancer Treatment and Reported Pain Compared With Those in Treatment: An Analysis of the 2017-2020 Behavioral Risk Factor Surveillance System
More than 1.6 million people are diagnosed with cancer each year. Despite the different treatment options available for cancer, many individuals refuse treatment for various reasons. However, little is known about the cumulative group of individuals who refuse treatment.
Cancer Advocacy & Patient Education (CAPE) Lung Pilot Study Evaluation: Findings From 4 Diverse Clinical Settings for Future Implementation and Dissemination
Fox Chase Cancer Center (FCCC) in collaboration with AONN+ conducted a pilot study to evaluate patient efficacy, provider feedback, and implementation of CAPE Lung using an implementation science framework in diverse cancer settings.
Cancer-related financial hardship is linked to poor health outcomes and early mortality. Oncology financial advocacy (OFA) aims to prevent cancer-related financial hardship in oncology settings by assessing patients’ needs and connecting them to available financial resources. Despite promising evidence, OFA remains underutilized.
During the COVID-19 pandemic, many cancer care services were delayed. Studies have documented increased distress and physical impacts on cancer survivors during the pandemic. Our study describes access to healthcare challenges, worry of COVID-19, health and social changes, and quality of life (QOL) among cancer survivors approximately 6 months into the pandemic, with specific focus on time since diagnosis.
Within the structure of a center-wide patient access redesign initiative, the nurse navigators evaluated their contributions and activities as professional registered nurses. They noticed a lack of standard interview questions and a patient referral process that holistically supported patients.
Community Navigation and Supportive Care Experiences of Low-Income Black and Latina Cancer Survivors: Patient and Navigator Perspectives
Little is known about the role of community-based navigation in supportive care delivery for historically marginalized cancer survivors. The purposes of this study were to evaluate supportive care experiences of low-income Black and Latina cancer survivors and examine the care role of their community navigator.
Cognitive Testing of Healthcare Professional and Patient Scales to Assess Affirming Care for Lesbian, Gay, Bisexual, Transgender, Queer, and Intersex Persons: The QUeering Individual and Relational Knowledge Scales (QUIRKS)
This study aimed to develop a pair of scales to assess impact of health education on patient- and provider-reported experiences that could signal a welcoming cancer care environment for sexual and gender minority (SGM) patients.
The QUeering Individual Relational and Knowledge Scales (QUIRKS): Validation of Companion Measures Assessing Lesbian, Gay, Bisexual, Transgender, Queer, and Intersex–Affirming Healthcare
This study conducted psychometric analyses to validate companion scales entitled the QUeering Individual and Relational Knowledge Scale (QUIRKS)-Provider and QUIRKS-Patient for providers and patients, respectively.
As part of Stony Brook University, a flagship university of the State University of New York system, the Stony Brook Cancer Center provides a full spectrum of services from primary to tertiary care across both inpatient and outpatient sites.
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Results 1 - 10 of 99
Results 1 - 10 of 99