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Original Research

Original Research

The Independent Specialty Medical Advocate Model of Patient Navigation and Intermediate Health Outcomes in Newly Diagnosed Cancer Patients

Ewan K. Cobran, PhD1; Yesenia Merino, MPH2; Beth Roach, MSA3; Sharon M. Bigelow, RN, MSN, ANP-BC, AOCNP3; Paul A. Godley, MD, PhD4
1University of Georgia, College of Pharmacy, Department of Clinical and Administrative Pharmacy, Athens, GA;
2University of North Carolina at Chapel Hill, Gillings School of Public Health, Department of Health Behavior, Chapel Hill, NC;
3NavigateCancer Foundation, Apex, NC;
4Lineberger Comprehensive Cancer Center and the Division of Hematology/Oncology, University of North Carolina at Chapel Hill, Chapel Hill, NC

 

Background: Navigation programs are generally characterized as providing patient-centered support and guidance intended to help patients and family members overcome barriers such as timely diagnosis resolution, patient satisfaction, coping with [ Read More ]

Original Research

Psycho-Oncological Education to Reduce Psychological Distress Levels in Patients with Solid Tumor Cancers: A Quality Improvement Project

L. Hendricks-Jackson1; K. Smith1; B. Kressel1; C. Bishop11; B. Posmontier2; C.J. Paller1
1Sidney Kimmel Comprehensive Cancer Center, Johns Hopkins Medical Institutions, Baltimore, MD;
2Drexel University, Philadelphia, PA

Background/Objectives: Cancer patients often experience psychological distress, and about 30% experience significant distress. A posttreatment educational intervention may help reduce the psychological distress level for this population. The purpose of [ Read More ]

Breast Cancer, Original Research

Cognitive Behavioral Therapy for Insomnia in a Patient with Breast Cancer

Laura Melton, PhD, ABPP
University of Colorado Anschutz Medical Campus, Aurora, CO 

Abstract: Cognitive and behavioral therapy techniques have been found to be helpful in treating insomnia and other sleep disorders. Higher rates of insomnia occur in the cancer population than the [ Read More ]

Barriers to Care, Original Research

The Relationships Between Psychosocial Factors and Group Cohesion in African American Women with Breast Cancer

Pearman D. Parker Hayne, MPH, RN, BSN1; Swann Arp Adams, PhD2; Sue P. Heiney, PhD, RN, FAAN1
1College of Nursing, University of South Carolina, Columbia, SC
2College of Nursing, Department of Epidemiology & Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC
 

Purpose: Nurse navigators and other nurses working with cancer survivors often lead patient and family support groups. An important component of a successful group is group climate, the relationships formed [ Read More ]

Original Research

Patient Navigation Effectiveness on Improving Cancer Screening Rates: A Meta-Analysis of Randomized Controlled Trials

Sobia F. Ali-Faisal, PhD
Program in Public Health, Stony Brook Medicine
Stony Brook University, Stony Brook, Long Island, NY

Tracey J. F. Colella, RN, PhD
Lawrence S. Bloomberg Faculty of Nursing
University of Toronto, Toronto, Canada
University Health Network/Toronto Rehabilitation Cardiovascular Prevention & Rehabilitation Program, Toronto, Canada
Naomi Medina-Jaudes
Program in Public Health, Stony Brook Medicine
Stony Brook University, Stony Brook, Long Island, NY
Lisa Benz Scott, PhD
Program in Public Health, Stony Brook Medicine
The School of Health Technology & Management
Stony Brook University, Stony Brook, Long Island, NY

 

Background: Despite the evidence establishing screening as effective in decreasing cancer mortality, rates remain below recommended levels. Patient navigation (PN) has shown promise to increase screening, yet the strength of [ Read More ]

Original Research

Perceived Economic Hardship and Distress in Acute Myelogenous Leukemia

Justin E. Bala-Hampton, DNP, MPH, RN, AGACNP-BC1; Linda Dudjak, PhD, RN1; Tara Albrecht, PhD, ACNP-BC, RN2; Margaret Q. Rosenzweig, PhD, FNP-BC, AOCNP, FAAN1
1School of Nursing, University of Pittsburgh, Pittsburgh, PA
2Virginia Commonwealth University School of Nursing, Richmond, VA 

Background: Multiple studies have quantified the direct and indirect costs and related patient hardship and distress in general cancer care; however, little attention has been focused on a particular cancer [ Read More ]

Original Research

Medication Adherence Among Patients with Chronic Myeloid Leukemia: The Impact of Financial Burden and Psychosocial Distress

Joanne S. Buzaglo, PhD1; Melissa F. Miller, PhD, MPH1; Clare Karten, MS1; Margaret L. Longacre, PhD1; Eberechukwu Onukwugha, MS, PhD2; Elisa S. Weiss, PhD3; Joseph A. Greer, PhD4; Mitch Golant, PhD1; Michael Mauro, MD5
1Cancer Support Community, Washington, DC
2University of Maryland School of Pharmacy, Baltimore, MD
3The Leukemia & Lymphoma Society, White Plains, NY
4Massachusetts General Hospital Cancer Center, Boston, MA
5Memorial Sloan Kettering Cancer Center, New York, NY

 

Background: Medication adherence is a key contributor to survival for patients with chronic myeloid leukemia (CML). About 25% to 35% of CML patients have been reported to have suboptimal medication [ Read More ]

Original Research

Efficacy of Patient Navigation in Cancer Treatment: A Systematic Review

C. E. Jojola, MA1; H. Cheng, BA1; L. J. Wong, MS1; E. D. Paskett, PhD, MSHP2; K. M. Freund, MD, MPH3; F. M. Johnston, MD, MHS1
1Medical College of Wisconsin, Surgical Oncology/Surgery, Milwaukee, WI
2Ohio State University College of Public Health, Department of Medicine/Cancer Prevention and Control, Columbus, OH
3Tufts University School of Medicine, Department of Medicine, Boston, MA

Introduction: Patient navigation (PN) assists patients with financial, social, and health-related barriers to care by providing a personal escort to alleviate obstacles to achieve timely treatment. Herein we analyze the [ Read More ]

Original Research

Causes of Cancer: From the Perspective of Gynecologic Cancer Survivors

Annamma Sam, PhD, WHNP-BC
Advanced Practice Nurse
MD Anderson Cancer Center, Houston, TX

Background: Individuals often have their own personal theories about what may have caused their illness, including cancer. Only a few studies have examined cancer causal attributions in gynecologic cancer survivors. [ Read More ]

Original Research, Survivorship

Cancer Survivorship in Primary Care: Barriers and Recommendations for Improving Care and Outcomes

Katherine C. Chin, RN; Margarita B. Rabinovich, RN
Columbia University School of Nursing
New York, NY 

Background: Due to advances in early cancer detection and treatment, more adults are surviving cancer and living long past the end of treatment. The growing population of cancer survivors exceeds [ Read More ]

Original Research

The Roles and Challenges of Oncology Navigators: A National Survey

Mazi Rasulnia, PhD, MBA, MPH
Pack Health, LLC

Regina Sih-Meynier, PharmD
Genentech, Inc

 

Background: Oncology navigation and patient navigators have been associated with lower total cost of care, better patient experience, clinician satisfaction, and higher quality of care. A formal assessment of the [ Read More ]

Original Research

Patient Satisfaction with Oncology Nurse Navigation Services

Peggy Malone, RN, BS, OCN
Lisa Bruno, RN, BSN, OCN
Order of Saint Francis Center for Cancer Care, Rockford, IL 

The concept of patient navigation was first described by its founder, Harold Freeman, MD, as interventions initiated in cancer care for the purpose of reducing barriers to timely screening, diagnosis, [ Read More ]

Breast Cancer, Original Research

Quantifying the Relational Dimensions of Study Staff in a Randomized Controlled Trial Among African American Women Recommended to Receive Breast Cancer Chemotherapy

Sarah F. Gallups, RN, BSN, MPH; Mary Connolly, RN, BSN; Jacqueline Simon, BA;
Margaret Q. Rosenzweig, PhD, FNP-C, AOCN, FAAN
University of Pittsburgh School of Nursing, Pittsburgh, PA

 

Background: The Adherence, Communication, Treatment, and Support (ACTS) randomized controlled intervention study was a one-time psychoeducational intervention encouraging adherence of African American women to prescribed chemotherapy. Surprisingly, 98% of both [ Read More ]

Original Research

The Polaris Oncology Survivorship Transition (POST) System: A Patient- and Provider-Driven Cancer Survivorship Planning Program

Erin O’Hea, PhD
Department of Psychiatry, University of Massachusetts Medical School, Worcester, MA
Department of Psychology, Stonehill College, Easton, MA

Juliet Wu, BS
Departments of Emergency Medicine and Psychiatry
University of Massachusetts Medical School, Worcester, MA

Laura Dietzen, MS; Tina Harralson, PhD
Polaris Health Directions, Wayne, PA

Edwin D. Boudreaux, PhD
Departments of Emergency Medicine, Psychiatry, and Quantitative Health Sciences
University of Massachusetts Medical School, Worcester, MA

 

Background: It is strongly recommended that individuals ending treatment for cancer have a “survivorship plan,” and new standards require survivorship planning for accreditation. However, a comprehensive plan is often neglected. [ Read More ]

Original Research

Survivorship Care Plan: Provider Version of SCP

Appendix A Survivorship Care Plan Provider Summary Name: PATIENT, MOCK DOB: 01/01/1950 Date of Plan: 10/16/2014 SCP Created by: Oncologist, MD Survivorship Care Plan: Provider Version of SCP The first [ Read More ]

Breast Cancer, Original Research

State of Personalized Medicine in Breast Cancer

Sarika Jain,1 Sachin G. Pai,2 Cesar A. Santa-Maria,1 William J. Gradishar1
1Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL 2Northwestern Medicine Developmental Therapeutics Institute, Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL 

It was estimated that 231,840 new breast cancers would be diagnosed in 2015, with 40,290 breast cancer–related deaths during the same period in the United States alone.1 With improvements in [ Read More ]

Original Research

Patient and Primary Care Practitioner Confidence in and Perceptions of Cancer Treatment Transition and the Shared Care Model of Cancer Care

Chantelle Carneiro, MSc1; Janet Ellis, MD2; Simron Singh, MD2; Matthew C. Cheung, MD2
1Chicago Medical School, Rosalind Franklin University of Medicine and Science, North Chicago, IL, USA
2Odette Cancer Centre, Sunnybrook Health Sciences Centre, University of Toronto, Toronto, ON, Canada 

Purpose: To examine cancer survivors’ satisfaction in the transition of care from oncologist to primary care physician (PCP), to identify patient and PCP concerns with the transition process, and to [ Read More ]

Breast Cancer, Original Research

A Pilot Study of a Virtual Navigation Program to Improve Treatment Adherence Among Low-Income Breast Cancer Patients

Kathy J. Helzlsouer1,2; Susan E. Appling1,3; Lisa Gallicchio1,2,4; Dawn Henninger5; Ryan MacDonald1; Shannon Manocheh1; Susan Scarvalone1; Arti P. Varanasi6
1The Prevention and Research Center, Mercy Medical Center, Baltimore, MD
2Department of Epidemiology, Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD
3Johns Hopkins University School of Nursing, Baltimore, MD
4Department of Epidemiology and Public Health, University of Maryland School of Medicine, Baltimore, MD
5Center for Cancer Prevention and Control, Maryland Department of Health and Mental Hygiene, Baltimore, MD
6Advancing Synergy, LLC, Baltimore, MD
 

Background: Socioeconomic disparities negatively impact completion of adjuvant breast cancer treatment. Navigation programs may improve treatment completion but may not be accessible to all patients, especially in low-resource communities. Objectives: [ Read More ]

Original Research

Oral Chemotherapy: Patient Education and Nursing Intervention

Cheryl Bellomo, MSN, RN, OCN, ONN-CG 

Background: With the cancer treatment paradigm shifting from the use of infusion chemotherapy that is administered in a clinical setting by oncology nurses to the use of oral chemotherapy that [ Read More ]

Original Research

The Impact of Patient Navigation in Low-Dose Computed Tomography Lung Screening

Kristi M. Griffith, MSN, RN, CHPN; Nora J. Barrett, BSN, RN, OCN; Kristi L. Case, MS, CHW; Susan W. Dahlin, BSN, RN, OCN; Stacey L. Webb, MPA-HCA, BSN, RN 

Background: The results from the National Lung Cancer Screening Trial in 2012 showed a 20% relative decrease in mortality with the use of annual low-dose computed tomography (LDCT) lung scans [ Read More ]

Breast Cancer, Original Research

Development and Evaluation of a Technology-Enhanced Interdisciplinary Navigation Program for Low-Income Breast Cancer Patients

Kathy J. Helzlsouer; Susan E. Appling; Susan Scarvalone; Shannon Manocheh; Ryan MacDonald; Lisa Gallicchio; Dawn Henninger; Arti P. Varanasi 

Background: Navigators have the potential to help overcome barriers that interfere with cancer treatment adherence, but their widespread use is economically challenging, especially in rural and low-resource communities. A centrally [ Read More ]

Breast Cancer, Original Research

A Feasibility Study of a Virtual Navigation Program for Low-Income Breast Cancer Patients

Kathy J. Helzlsouer; Susan E. Appling; Susan Scarvalone; Shannon Manocheh; Ryan MacDonald; Lisa Gallicchio; Dawn Henninger; Arti P. Varanasi 

Background: Socioeconomic disparities negatively impact completion of adjuvant breast cancer treatment. Navigation programs may improve treatment completion but may not be accessible to all patients, especially in low-resource communities. Objective: [ Read More ]

Original Research

Identifying Barriers to Navigation Needs of Cancer Survivors in Rural Areas

Pam Baker DeGuzman, PhD, MBA, RN; Christina Sheffield, BS; Lindsay R. Hauser, MS; Jessica Sherman, MSN, RN; Jessica Keim-Malpass, PhD, MS, RN 

Background: It is well known that patients with cancer who reside in rural areas have challenges accessing comprehensive survivorship care because of geographic and financial constraints. Providers of cancer care [ Read More ]

Original Research

Agreement Between Patient Self-Report and an Objective Measure of Treatment Among African American Women with Breast Cancer

Sue P. Heiney, PhD, RN, FAAN 

Background: Only a limited amount of research is focused on African American women with breast cancer and treatment adherence (TA). One potential barrier to TA may be a lack of [ Read More ]

Original Research

Systematic Assessment of Cancer Patient Navigation in Appalachia

Eugene J. Lengerich, VMD, MS; BEsty Aumiller, MEd, DEd; Brenda C. Kluhsman, PhD, MSS; Marcyann Bencivenga, BA; Christopher Louis, MHA; Linda Fleisher, PhD, MPH; Electra D. Paskett, PhD; Mark B. Dignan, PhD, MPH 

Background: Patient navigation (PN) has been proposed to address disparities in cancer mortality. Appalachia is largely rural with a population characterized by a high poverty rate and limited access to [ Read More ]

Breast Cancer, Original Research

Navigation Needs for Breast Health and Breast Cancer Populations in Low- and Middle-Income Countries

Lillie D. Shockney, RN, BS, MAS, ONN-CG 

Breast cancer remains the most feared disease by all women, unrelated to their race, ethnicity, or age. Among major cancers, cancer of the breast is the most common cancer in [ Read More ]

Original Research

Lymphedema Knowledge and Practice Patterns Among Oncology Nurse Navigators

Mei R. Fu, PhD, RN, ACNS-BC 

Abstract: Cancer survivorship is a continuum spanning diagnosis, treatment, and recovery. Oncology nurse navigators educate and support cancer survivors who face long-term adverse effects of cancer treatment such as lymphedema. [ Read More ]

Original Research

Implementation of a Theory-Based, Nonclinical Patient Navigator Program to Address Barriers in an Urban Cancer Center Setting

Linda Fleisher, PhD, MPH 

Abstract: Cancer patients face a myriad of psychosocial and practical issues. Especially challenging is the time from an initial diagnosis to the onset of treatment, and patient navigation services are [ Read More ]

Original Research

Mujer A Mujer/Woman to Woman

Sally Cascella, MAHSN, BSN, RN, CNOR 

The Norma F. Pfriem Breast Care Center (NPBCC) is a comprehensive breast care center, providing screening, diagnosis, treatment, outreach, and supportive services. The center serves Connecticut’s southern Fairfield County, including [ Read More ]

Original Research

Breast Health Education and Cancer Awareness: A Community Hospital Embracing a Novel Approach

Danelle Johnston, RN, BSN, OCN, CBCN 

Exculuding skin cancer, breast cancer is the most common cancer among women and is the second-leading cause of cancer death in women.1-3 In 2011, the American Cancer Society estimated there [ Read More ]

Original Research

Patient Navigation: Blending Imaging and Oncology in Breast Cancer

Jeannine Arias, RN, MBA, MSN, CBCN, CBPN-IC 

Background: Patient navigation in cancer care refers to the individualized care provided to cancer patients, families, and caregivers to ease multiple barriers and facilitate timely access to qualified medical and [ Read More ]

Breast Cancer, Original Research

Stress Therapy Empowering Prevention (STEP): A Healthy Lifestyle Program for Breast Cancer Patients

Amy M. Burke, RN, BSN 

Purpose: Develop and implement a comprehensive program for lifestyle change, empowering breast cancer patients to manage stress effectively and improve their mental and physical health. Method: Women with breast disease [ Read More ]

Original Research

From Breast Cancer Screening to Definitive Diagnosis: Strategies for Successfully Serving the Underserved

Dawn Parsons, RN, OCN 

Significance: Uninsured patients receive half the care of their insured counterparts, leading to poorer health outcomes as a result of delayed diagnoses. Breaks in cancer care impact survival rates and [ Read More ]

Original Research

Streamlining Navigation for Urban and Rural Communities in Texas

Melanie L. Senter, RN, OCN 

Background: Tarrant, Denton, Wise, Parker, Hood, and Johnson counties have a higher incidence of invasive breast cancer than any other part of Texas. An estimated 55,000 women from these counties [ Read More ]

Original Research

Breast Nurse Navigator Role Impacts Cancer Patients and the Healthcare Team

Loril Garrett, BSN, RN, OCN, CBPN-IC, CBCN 

Objectives: To evaluate the impact of the breast nurse navigator (BNN) role on the breast cancer population served, physicians, and the multidisciplinary team. Methods: The BNN met with patients who [ Read More ]

Original Research

From Breast Cancer Screening to Definitive Diagnosis: Strategies for Successfully Serving the Underserved

Dawn Parsons, RN, OCN 

Background: Uninsured patients receive half the care of their insured counterparts, leading to poorer health outcomes as a result of delayed diagnoses. Breaks in cancer care impact survival rates and [ Read More ]

Original Research

Incidence and Characteristics of BRAF V600E Mutation in Colorectal Cancer with Mismatch Repair Protein Defect Due to Loss of MLH1: A Prospective Evaluation of 104 Consecutive Patients

Sameer Mahesh, MD 

Background: Mismatch repair (MMR) protein –deficient colorectal cancer (CRC), which accounts for 15% to 20% of all CRC, can be sporadic or genetic, due to Lynch syndrome (LS). Loss of [ Read More ]

Original Research

Testing an Optimal Model of Patient-Centered Cancer Care

Beth Lapham, BA 

Objective: The early phases of cancer care have received relatively little research attention. The period of time surrounding the diagnosis and shortly thereafter involves information-seeking, momentous decision-making, and navigation among [ Read More ]

Original Research

Influencing Factors for a Contralateral Prophylactic Mastectomy

Sharon S. Gentry, RN, MSN, AOCN, CBCN, ONN-CG
Breast Nurse Navigator
Novant Health Derrick L. Davis Cancer Center,
Winston-Salem, NC 

Background: Patients with unilateral breast cancer sometimes choose contralateral prophylactic mastectomy as a surgical choice. The rates of contralateral prophylactic mastectomy have increased over the past decade, despite knowledge that [ Read More ]

Original Research

Breast Patient Navigation Program Hopes To Reduce Disparities Among Hispanic/Latina Women

Dawn Lagrosa 

Having identified healthcare disparities reflected in the incidence of morbidity and mortality of breast cancer among Hispanic/Latina women (HLW), a team of nurses, Gina Miranda-Diaz, MSN, MPH, RN-CBPN-I; Magaly Fernandez-Ghander, [ Read More ]

Original Research

Inpatients’ Perceptions of Cancer-Related Distress Assessment

Jay R. Swanson RN, BSN, OCN 

Purpose: To examine patients’ perceptions of cancer-related distress, patient expectations that may result from this assessment, and the extent to which those expectations were addressed during hospitalization. Method: A prospective, [ Read More ]

Original Research

The Forgotten Survivor: Supporting Women with Metastatic Breast Cancer and Their Spouses

Lillie D. Shockney, RN, BS, MAS, ONN-CG 

Breast cancer accounts for 1 in every 3 cancers diagnosed in American women today. About 155,000 women are living with metastatic breast cancer in the United States, and this number [ Read More ]

Original Research

Needs of Older and Elderly Cancer Survivors

Marietta Stanton, PhD, RN, CMAC, NEA, BC, CCM 

A self-administered questionnaire was distributed to a convenience sample of cancer survivors (N = 237) attending an annual cancer survivors’ day organized by a community cancer center. Responses were used [ Read More ]